Well, now we know she has Coarctation of the Aorta. This is a very treatable defect!
Next month, she will have a two hour MRI of her heart and blood vessels in her brain (sometimes this condition also effects the brain). This MRI will also determine what kind of surgery she will need. She will have life long blood pressure, but that is treatable.
We are SO SO grateful for this diagnosis. Our doctor said that this will be a "cakewalk" compared to what we have been through with Carter.
Our little girl has a hope and a future!